So…If you read my post on March 20, 2018,…you know that I just celebrated fifteen (15) years since receiving my double lung transplant. I also made a trip to Vanderbilt for my clinic visit that day. For those who are curious, time has granted me a few rewards…and a few new issues.
- Prograf (tacrolimus) dosage and blood level goal has been reduced.
- A1C is down to 5.8 from around 7.0 (would indicate a pre-diabetic level).
- Since last April I’ve reduced my weight from ~245 lbs to ~200 lbs (I’m floating between 200 and 204 depending on the day). When my thyroid went south, I gained over 25 lbs in about a month and a half.
- “Fish Oil” has been added to my daily chemistry set. My cholesterol and triglycerides are on the “high” side.
- Vitamin D intake has been increased to 3x/week.
- Imuran (azathioprine) has been put on hold until I see rheumatologist tomorrow. I’ve been experiencing severe joint pain for about the last three (3) months.
- Prednisone dosage has been reduced to 5 mg daily.
- FEV1 (lung capacity) is showing a steady decline. I’m not sure if I can equate that to lowered exercise tolerance due to the chronic pain or time just taking its toll. If I remember right, my level was 2.93 (liters on a 4.0 scale).
- Butrans (pain patch) has been increased to 20mcg/hr (gets replaced every seven days).
- Neurontin (gabapentin) dosage is increased to 1200mg 3x/day (helps with pain).
I’ll have to get the “blue box” out and a complete count of how many medications I’m on at this time. I’m sure it’s approaching twenty (20) again.
How is it my friend Barb says. “…barely living through chemistry”. I agree wholeheartedly.
Until next time…God bless you and keep you. I would be celebrating this fifteen year mark without the grace of God.
